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Scleroderma Talks

Overview, Research , Specific Manifestations, Self Management
 Please click the appropriate link below to be forwarded to a specific video. List is by category then by most recent.
Green text indicates talks were recorded at Scleroderma Foundation National Conferences (2011, 2010)

Title Speaker Event Date
Overviews      
Overview of Symptoms and Treatment of Scleroderma M. Abdulky, MD Syracuse Ed Forum Nov 2011
Scleroderma and Medications Jessica Farrell, PharmD Albany Educational Forum Sept 2011
Keynote: Promise of Genomics/Genome Based Personal Health Care A. Baxevanis, Ph.D SF National Patient Education Conference July 2011
Keynote (Close) Coping with Scleroderma James Lemons, Ed.D SF National Patient Education Conference July 2011
Scleroderma Overview & Commentary Santhanam Lakshminarayanan, M.D. Ct. Ed. Forum, UCONN Medical Ctr May 2011
What's New in Scleroderma Laura K. Hummers, MD Spring Ed. Forum, HSS - NY NY April 2011
Autoimmune Disease Patient Education Panel (Part 1) R. Lahita,MD, R. Baron Faust,MPH, M. Picone, MD Auto Immune Patient Education Panel Discussion, Hackensack Univestiy Hospital April 2011
Autoimmune Disease Patient Education Panel (Part 2) L. Wunderman, J. Gordon, MD
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Overview of Scleroderma Barry Gruber, MD Long Island Ed Forum, Huntington NY Oct 2010
Scleroderma: History & Prospects Dame Carol Black, DBE SF National Patient Education Conference (Opening Keynote Address July 2010
Overview of Scleroderma Howard Blumstein, MD LI Ed Forum, Huntington NY April 2009
       
Research      
Scleroderma: Heredity and Environment T. Medsger, MD Fall Research Forum, NYC Nov 2011
Advances in Basic & Clinical Research Panel (Drs. Furst, Mayes, Lafyatis) SF National Patient Education Conference July 2011
Participating in a Scleroderma Research Trial J. Gordon, MD Annual Research Forum Nov 2010
Advances in Understanding the Pathogenesis of Scleroderma R. Lafyatis, MD Annual Research Forum Nov. 2010
Research Update James R. Seibold, MD CT Ed Forum, UConn Medical Center Sept 2010
Advances in Basic & Clinical Research Panel SF National Patient Education Conference July 2010
Updates in Scleroderma Research Stephen I Katz, MD, Ph.D SF National Patient Education Conference (Closing Keynote Address) July 2010
Scleroderma Research - Have we Made Progress Carol Black, MD NYC Research Forum, New York, NY Nov 2009
Research Advances Jessica Gordon, MD LI Ed Forum, Huntington NY April 2009
Is Scleroderma Genetic or Environmental Carol Feghali-Bostwick, MD Joint Chapter Forum, New Brunswick, NJ Oct 2007
       
Specific Manifestations      
Adenosine in Skin Fibrosis Edwin Chan, MD Tri-State Fall Research Forum Nov 2011
Autoimmune Disease and the Dry Eye James Aquavella, MD Rochester Ed. Forum, University of Rochester Sept 2010
Dental Issues Related to Scleroderma David Leader, DMD SF National Patient Education Conference July 2011
GI Manifestations in Scleroderma T. Ben-Menachem, MD Joint Chapter Forum Oct. 2011
GI Involvement in Scleroderma Lawrence Saubermann, MD Rochester Ed. Forum, UNiversity of Rochester Sept 2011
Managing GI Involvement Dinesh Khanna, MD SF National Patient Education Conference July 2011
Why Won't My Food Digest (GI) Philip Jaffe, MD Ct. Ed. Forum, UCONN Medical Ctr May 2011
Fundamentals of Hand Care for Scleroderma Celeste Freeman, OTR/l CHT Albany Ed. Forum Sept 2011
Maintaining Hand Function Marianne Moran, OTR Joint Chapter Forum, New Brunswick, NJ Oct 2009
Lung Transplantation Rajeev Saggar, MD SF National Patient Education Conference July 2011
New Insights- Scleroderma Lung Disease (ILD) Erica L. Herzog, ND CT Ed Forum, UConn Medical Center Sept 2010
Basic Nutrition & Scleroderma Danielle Stegman, RD Syracuse Ed Forum Nov 2011
Oral Health & Scleroderma David Leader DMD NYC Ed Forum, NY,NY. April 2009
Pulmonary Arterial Hypertension in Scleroderma Vallerie McLaughlin, MD SF National Patient Education Conference July 2011
Update of the Management of Lung Disease in Scleroderma: A Focus on Pulmonary Hypertension Sean Studer, MD Joint Chapter Forum, New Brunswick NJ Oct 2010
Pulmonary Arterial Hypertension Harrison Farber, MD SF National Patient Education Conference July 2010
Pulmonary Arterial Hypertension James White III, MD Rochester Ed Forum, Rochester, NY Nov 2008
Pulmonary Fibrosis Richard Silver, MD SF National Patient Education Conference July 2011
Raynaud Phenomenon & Digital Ulcers Lorinda Chung, MD SF National Patient Education Conference July 2011
Raynaud's Phenomenon Francesco Boin, MD SF National Patient Education Conference July 2010
Skin Problems in Scleroderma Heidi Jacobe, MD SF National Patient Education Conference July 2011
Sexuality & Scleroderma Jessica Gordon, MD LI Ed Forum, Huntington NY April 2010
       
Self Management      
Nutritional Strategies in Scleroderma Rose Payne, CHHC Joint Chapter Forum, Somerville NJ October 2011
Change your Mind, Change Your Health, Change Your Life Mark Pettus, MD Albany Ed. Forum (Tri-State) Sept 2011
Be Your  own Best Advocate (revised) Jan Gnall, MA Long Island Ed Forum, Huntington NY Oct 2010
Self Management Strategies Deborak McCloskey, RN CT Ed Forum, UConn Medical Center Sept 2010
NeedyMeds Richard J. Sagall, MD Scleroderma Spring Forum April 2010
       
       
       

(Green text indicates the talks were part of the Scleroderma Foundation's National Patient Education Conferences,( San Francisco July 2011, Boston July 2010)
Disclaimer:Neither the Scleroderma Foundation (including its member chapters), nor Starlight Productions, nor the featured speakers, make any recommendation or endorsement of any specific treatment, medication or product for any individual.  Patients are advised to consult with their own healthcare professionals regarding their own treatments.




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